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Rogan Josh
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quote: Originally posted by November Adam
Rogan Josh...
how are you dealing with the fatigue? Mine hits me so hard some days I need a nap. It's also interfering with my work. Fortunately I talked to some people at the hospital and they told me how cooling helps. I'm in a relapse right now... have been for about 6 months, and I'm beeing hit hard with nerve pain in my hands, and now my legs and feet. They are trying to control it with medication, but it is having a limited success. But as a side effect it is increasing my fatigue. Fortunately as of late I can work from home, so I can rest when I need to, but I'm only managing at the most 6hours of work a day.
The other problem is the depression... it has been making me moody. Cranky as hell most of the times, which isn't good with a new baby around! |
You sound a lot worse than me - I seem to have a very mild form. At the moment I am in remission, so I have no symptoms at all and feel great.
During an 'attack' (or whatever you are supposed to call them) I don't really suffer from fatigue either. I feel fine 'mentally' - it only affects my feeling in my arms and legs and my ability to coordinate them. I have never been paralysed but I have lost my sense of proprioception (sp?) - ie. the ability to know where my arm is without watching it. But mainly I just go numb.
I do find that the drugs (steroids) they give me to treat it make me really tired. I just want to curl up in a corner and die basically. The doctors say that the episode will go away on its own without treatment, but will just take longer to go away without the drugs, so I am tempted to tell them I don't want treatment any more. I think a longer period of numbness is more desirable than being completely non-functional. With numbness I can still go to work and everything - my only worry would be that without the drugs it will go passed the simple proprioception loss into paralysis. Or even worse - the damage might become bad enough to leave permanent scars (I have a few of these already but my brain was able to find alternate routes for the signals).
I am not convinced the doctors know what they are doing.
I suppose your symptoms just depend on which part of the brain the MS is affecting. Presumably it is attacking the bit of your brain which gets the pain signals. With me it is mainly the touch part, so I think I have been reasonably lucky. Also, my longest episode lasted about 3 months. Your episode of 6 months sounds awfully long! Are they getting longer?
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Boris Godunov
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Portland, OR
Aug 2001 time: 00:22
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No kidding, I'm so turned off right now, blech!

Alright, lessee...
Nearsighted (I can see how many fingers you're holding up at 4 feet, so it's pretty bad). I wear glasses and contacts. Astygmatism as well.
The toenail on my right big toe is a little gnarly, thanks to a mediocre foot doctor handling an ingrown toenail when I was 13 or 14.
My right front tooth was chipped on the edge of a sidewalk when I was about 11 or so, and I have a porcelain crown.
When I was little, I was slightly anemic and took iron supplements. Not a problem now.
I was overweight for much of my adolescence, reaching an amazing 225 lbs when I was 17 (being 5'8, that's a biiiiiiit much). However, I am now 155 lbs and in pretty good shape, going to the gym 3-4 times a week and eating very healthy, not eating red meat, pork or poultry.
I have very mild allergies which are mostly non-existent except in extreme conditions (very high pollen counts or a profuse number of cats).
I can't eat raw onions, because it sparks a nasty condition in my tummy. 
Just had a physical, and my blood pressure is perfect, cholesterol low, excellent hearing and a full head of hair that, judging by my family, will be there until I die.
Now, I am worried about inheriting some things from my family that may show up later. My mom and her mother both developed chronic digestive problems, my grandmother developed an allergy to chocolate in her 40s (I would die!), and she also was diagnosed with alzheimer's, which I know isn't proven hereditary, but it still scares me. Fortunately for her, the massive lung cancer killed her before it had much effect.
So I'm mostly pretty fit and healthy. I think living in NY has really beefed up my immunity, as I now rarely get sick at all, except for a mild cold about once a year. I'm probably a carrier and am spreading germs to the rural areas every time I go home for the holidays. 
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Caligastia
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quote: Originally posted by Boris Godunov
I think living in NY has really beefed up my immunity |
Where are you originally from?
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David Floyd
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The bottom of a large bottle of beer
Jan 1970 time: 05:22
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Hmmm....
My vision is 20/40
A steel rod in my radius and another in my ulna
Mild exhaustion, from working too much, sleeping too little, and not exercising enough
Lost a lot of muscle mass from about 8 months ago (pre-arm break period, when I worked out a lot)
Very occasional mild depression, but not usually unless I drink by myself (which I don't do anymore)
Acne scarring on face (in process of fading somewhat, woohoo)
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David Floyd
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The bottom of a large bottle of beer
Jan 1970 time: 05:22
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Oh yeah, I'm also a bit hard of hearing. Dunno why, just don't hear that well often times.
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Arrian
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Kneel before Grog!
Jul 2001 time: 00:22
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Wow, people are screwed up.
As for me:
Scoleosis (sp?) - a couple of vertebrae in my lower back are malformed, causing a curve in my spine. Hasn't really hampered me much. Bad things happen when I attempt to run long distances repeatedly, though.
Very near-sighted (-3.5 contact perscription).
Out of shape/overweight. I've been blessed with a pretty good metabolism, and I'm abusing the hell out of it.
Neck ache. I slept on it weird one night about a week ago, and my neck has been all screwed up since.
Cough. Just coming off a cold.
My right wrist may be a problem down the road. I broke it rather badly back in middle school and it still makes funky noises... all the bones got smashed, and that just doesn't heal 100%.
I think I may be a bit lactose intolerant, but isn't just about everybody?
So, basically I don't really have much to ***** about. No allergies, no mental disorders (that I know of ), no nasty illnesses, and the overweight part is nobody's fault but mine (well, Mr. Beer too).
-Arrian
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All times are GMT. The time now is 05:22. Apolyton Time is 00:22. |
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